- AutorIn
- Jeremy Hobart
- Amy Bowen
- George Pepper
- Harriet Crofts
- Lucy Eberhard
- Thomas Berger
- Alexey Boyko
- Cavit Boz
- Helmut Butzkueven
- Elisabeth Gulowsen Celius
- Jelena Drulovic
- José Flores
- Dana Horáková
- Christine Lebrun-Frénay
- Ruth Ann Marrie
- James Overell
- Fredrik Piehl
- Peter Vestergaard Rasmussen
- Maria José Sá
- Carmen-Adella Sîrbu
- Titel
- International consensus on quality standards for brain health-focused care in multiple sclerosis
- Zitierfähige Url:
- https://nbn-resolving.org/urn:nbn:de:bsz:14-qucosa2-720671
- Quellenangabe
- Multiple Sclerosis Journal
Erscheinungsjahr: 2019
Jahrgang: 25
Heft: 3
Seiten: 1809-1818
E-ISSN: 1477-0970 - Erstveröffentlichung
- 2019
- Abstract (EN)
- Background: Time matters in multiple sclerosis (MS). Irreversible neural damage and cell loss occur from disease onset. The MS community has endorsed a management strategy of prompt diagnosis, timely intervention and regular proactive monitoring of treatment effectiveness and disease activity to improve outcomes in people with MS. Objectives: We sought to develop internationally applicable quality standards for timely, brain health–focused MS care. Methods: A panel of MS specialist neurologists participated in an iterative, online, modified Delphi process to define ‘core’, ‘achievable’ and ‘aspirational’ time frames reflecting minimum, good and high care standards, respectively. A multidisciplinary Reviewing Group (MS nurses, people with MS, allied healthcare professionals) provided insights ensuring recommendations reflected perspectives from multiple stakeholders. Results: Twenty-one MS neurologists from 19 countries reached consensus on most core (25/27), achievable (25/27) and aspirational (22/27) time frames at the end of five rounds. Agreed standards cover six aspects of the care pathway: symptom onset, referral and diagnosis, treatment decisions, lifestyle, disease monitoring and managing new symptoms. Conclusion: These quality standards for core, achievable and aspirational care provide MS teams with a three-level framework for service evaluation, benchmarking and improvement. They have the potential to produce a profound change in the care of people with MS.
- Andere Ausgabe
- Link zum Artikel der zuerst in der Zeitschrift 'Multiple Sclerosis Journal' erschienen ist.
DOI: 10.1177/1352458518809326 - Freie Schlagwörter (DE)
- Multiple Sklerose, Qualitätsverbesserung, Konsens, Standards, Delphi-Technik, Benchmarking
- Freie Schlagwörter (EN)
- Multiple sclerosis, quality improvement, consensus, standards, Delphi technique, benchmarking
- Klassifikation (DDC)
- 610
- Verlag
- Sage, London
- Version / Begutachtungsstatus
- publizierte Version / Verlagsversion
- URN Qucosa
- urn:nbn:de:bsz:14-qucosa2-720671
- Veröffentlichungsdatum Qucosa
- 17.05.2022
- Dokumenttyp
- Artikel
- Sprache des Dokumentes
- Englisch
- Lizenz / Rechtehinweis
- CC BY-NC 4.0