Designing Privacy in Personalized Health: An Empirical Analysis

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Version: Final published version
License: CC BY 4.0
Serval ID
serval:BIB_14CAAD2BF6E1
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Designing Privacy in Personalized Health: An Empirical Analysis
Journal
Big Data & Society
Author(s)
Deruelle T., Kalouguina V., Trein Ph., Wagner J.
Publication state
Published
Issued date
2023
Peer-reviewed
Oui
Volume
10
Number
1
Pages
1-9
Language
english
Abstract
A crucial challenge for personalized health is the handling of individuals’ data and specifically the protection of their privacy. Secure storage of personal health data is of paramount importance to convince citizens to collect personal health data. In this quasi-experimental, cross-sectional study, we test individuals’ willingness to produce and store personal health data, based on different storage option whether this data is presented as common good or private good. In this study, we focus on the non-medical context with two means to self-produce data via connected devices that record physical activity or elect to take a genetic test to appraise risks of diseases. We use data from a survey experiment fielded in Switzerland in March 2020 and perform regression analyses on a representative sample of Swiss citizens in the French- and German-speaking cantons. Our analysis shows that respondents are more likely to use both apps and tests when data are presented as private good that would be stored by individuals themselves. Our results demonstrate that concerns regarding the privacy of personal heath data storage trumps any other variables when it comes to the willingness to use personalized health technologies. Individuals prefer a data storage format where they retain control over the data. Ultimately, this study presents results susceptible to inform decision-makers in designing privacy in personalized health initiatives.
Keywords
personalized health, health apps, genetic tests, data storage
Open Access
Yes
Funding(s)
Swiss National Science Foundation / Projects / CRSII5_180350
Create date
19/01/2023 17:05
Last modification date
04/03/2023 7:08
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