Pictorial Representation of Illness and Self Measure (PRISM): A Novel Visual Instrument to Quantify Suffering in Liver Cirrhosis Patients and Liver Transplant Recipients
BACKGROUND: The level of suffering of chronically ill patients does not necessarily correlate with illness severity. In this study, we evaluated the burden of suffering and its impact on health-related quality of life in liver transplant recipients and liver cirrhosis patients. MATERIAL AND METHODS:...
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FB/Einrichtung: | FB 05: Medizinische Fakultät |
Dokumenttypen: | Artikel |
Medientypen: | Text |
Erscheinungsdatum: | 2018 |
Publikation in MIAMI: | 09.05.2019 |
Datum der letzten Änderung: | 23.01.2020 |
Angaben zur Ausgabe: | [Electronic ed.] |
Quelle: | Annals of Transplantation 23 (2018), 674-680 |
Schlagwörter: | Liver Cirrhosis; Liver Transplantation; Quality of Life |
Fachgebiet (DDC): | 610: Medizin und Gesundheit |
Lizenz: | CC BY-NC-ND 4.0 |
Sprache: | English |
Förderung: | Finanziert durch den Open-Access-Publikationsfonds 2018 der Deutschen Forschungsgemeinschaft (DFG) und der Westfälischen Wilhelms-Universität Münster (WWU Münster). |
Format: | PDF-Dokument |
URN: | urn:nbn:de:hbz:6-55109514861 |
Weitere Identifikatoren: | DOI: https://doi.org/10.12659/AOT.910278 |
Permalink: | https://nbn-resolving.de/urn:nbn:de:hbz:6-55109514861 |
Onlinezugriff: | artikel_kabar_2018.pdf |
BACKGROUND: The level of suffering of chronically ill patients does not necessarily correlate with illness severity. In this study, we evaluated the burden of suffering and its impact on health-related quality of life in liver transplant recipients and liver cirrhosis patients. MATERIAL AND METHODS: The Pictorial Representation of Illness and Self Measure (PRISM) was used to explore levels of suffering in outpatients of Münster University Hospital, Germany. Self-illness separation scores were analyzed as a measure of disease-specific burden of suffering. Health-related quality of life was measured using the Short Form Health Survey (SF-36). RESULTS: Data from 201 subjects were statistically analyzed. Median Self-illness separation scores for liver transplant recipients and patients with liver cirrhosis were 13.5 (minimum/maximum: 0.2/25.6) cm and 6.3 (0.1/25.6) cm (p