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Participation Measures for Preschool Children with Autism Spectrum Disorder: a Scoping Review

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Abstract

The purpose of this scoping review was to identify participation measures for preschool children with autism spectrum disorder (ASD). A comprehensive search strategy was employed across several electronic databases with hand searching of reference lists. Seven measures of participation were identified; five measures had standardization samples that included preschool children with ASD and three provided both validity and reliability data. Each assessment reported psychometric properties and covered a range of developmentally appropriate activities and environments. Parents and professionals can use the identified participation measures to describe participation challenges that exist. However, professionals may need to elicit additional information regarding the impact of repetitive and restrictive interests, interpersonal abilities and novel environments on participation to capture the core challenges of ASD.

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References

  • Adolfsson, M., Malmqvist, J., Pless, M., & Granuld, M. (2011). Identifying child functioning from an ICF-CY perspective: everyday life situations explored in measures of participation. Disability and Rehabilitation, 33(13–14), 1230–1244.

    Article  PubMed  Google Scholar 

  • American Psychiatric Association. (2014). Diagnostic and statistical manual of mental disorders, fifth edition (DSM-5). Washington: American Psychiatric Association.

    Google Scholar 

  • Anderson, S., Allen, P., Peckham, S., & Goodwin, N. (2008). Asking the right questions: scoping studies in the commissioning of research on the organization and delivery of health services. Health Research Policy & Systems, 6(1), 1–12.

    Article  Google Scholar 

  • Arksey, H., & O’Malley, L. (2005). Scoping studies: towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.

    Article  Google Scholar 

  • Askari, S., Anaby, D., Bergthorson, M., Majnemer, A., Elsabbagh, M., & Zwaigenbaum, L. (2015). Participation of children and youth with autism spectrum disorder: a scoping review. Review Journal of Autism and Developmental Disorders, 2, 103–114.

    Article  Google Scholar 

  • Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation. NeuroRehabilitation, 19(3), 191–205.

    PubMed  Google Scholar 

  • Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilation, 12(5), 342–351.

    Article  Google Scholar 

  • Berg, C., & LaVesser, P. (2006). The preschool activity card sort. OTJR: Occupation, Participation and Health, 26(4), 143–151.

    Google Scholar 

  • Bult, M. K., Verschuren, O., Kertoy, M. K., Lindeman, E., Jongmans, M. J., & Ketelaar, M. (2013). Psychometric evaluation of the Dutch version of the Assessment of Preschool Children’s Participation (APCP): construct validity and test-retest reliability. Physical & Occupational Therapy in Pediatrics, 33(4), 372–383.

    Article  Google Scholar 

  • Burstyn, I., Sithole, F., & Zwaigenbaum, L. (2010). Autism spectrum disorders, maternal characteristics and obstetric complications among singletons born in Alberta, Canada. Chronic Diseases in Canada, 30(4), 125–134.

    PubMed  Google Scholar 

  • Castro, S., & Pinto, A. (2015). Matrix for assessment of activities and participation: measuring functioning beyond diagnosis in young children with disabilities. Developmental Neurorehabilation, 18(3), 177–189.

    Article  Google Scholar 

  • Chien, C. W., Rodger, S., Copley, J., & McLaren, C. (2013). Measures of participation outcomes related to hand use for 2- to 12-year-old children with disabilities: a systematic review. Child: Care, Health and Development, 40(4), 458–471.

    Google Scholar 

  • Chien, C. W., Rodger, S., Copley, J., & Skorka, K. (2014). Comparative content review of children’s participation measures using the International Classification of Functioning, Disability and Health—Children and Youth. Archives of Physical Medicine and Rehabilitation, 95(1), 141–152.

    Article  PubMed  Google Scholar 

  • Chien, C. W., Rodger, S., & Copley, J. (2015). Development and psychometric evaluation of a new measure for children’s participation in hand-use life situations. Archives of Physical Medicine & Rehabilitation, 96(6), 1045–1055.

    Article  Google Scholar 

  • Christensen, D.L., Bilder, D.A., Zahorodny, W., Pettygrove, S., Durkin, M.S., Fitzgerald, R.T., … Yeargin-Allsopp, M. (2016). Prevalence and characteristics of autism spectrum disorder among 4-year-old children in the Autism and Developmental Disabilities Monitoring Network. Journal of Developmental & Behavioral Pediatrics, 37(1), 1–8.

  • Colquhoun, H.L., Levac, D., O’Brien, K.K., Straus, S., Tricco, A.C., Perrier, L., … Moher, D. (2014). Scoping reviews: time for clarity in definitions, methods and reporting. Journal of Clinical Epidemiology, 67, 1291–1294.

  • Coster, W., & Khetani, M. A. (2008). Measuring participation of children with disabilities: issues and challenges. Disability & Rehabilitation, 30(8), 639–648.

    Article  Google Scholar 

  • Daniels, A. M., & Mandell, D. S. (2013). Explaining differences in age at autism spectrum disorder diagnosis: a critical review. Autism, 18(5), 583–597.

    Article  PubMed  PubMed Central  Google Scholar 

  • Grant, M. J., & Booth, A. (2009). A typology of reviews: an analysis of 14 review types and associated methodologies. Health Information & Libraries Journal, 26(2), 91–108.

    Article  Google Scholar 

  • Hemmingsson, H., & Jonsson, H. (2005). An occupational perspective on the concept of participation in the International Classification of Functioning, Disability and Health—some critical remarks. American Journal of Occupational Therapy, 59(5), 569–576.

    Article  PubMed  Google Scholar 

  • Hoogsteen, L., & Woodgate, R. L. (2010). Can I play? A concept analysis of participation in children with disabilities. Physical & Occupational Therapy in Pediatrics, 30(4), 325–339.

    Article  Google Scholar 

  • Johnson, C. P., & Myers, S. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120(5), 1183–1215.

    Article  PubMed  Google Scholar 

  • Khetani, M. A., Graham, J. E., Davies, P. L., Law, M. C., & Simeonsson, R. J. (2015). Psychometric properties of the young children’s participation and environment measure. Archives of Physical Medicine and Rehabilitation, 96(2), 307–316.

    Article  PubMed  Google Scholar 

  • LaVesser, P., & Berg, C. (2011). Participation patterns in preschool children with an autism spectrum disorder. OTJR: Occupation, Participation and Health, 31(1), 33–39.

    Google Scholar 

  • Law, M. (2002). Participation in the occupations of everyday life. American Journal of Occupational Therapy, 56(6), 640–649.

    Article  PubMed  Google Scholar 

  • Law, M., Finkelman, S., Hurley, P., Rosenbaum, P., King, S., King, G., & Hanna, S. (2004). Participation of children with physical disabilities: relationships with diagnosis, physical function, and demographic variables. Scandinavian Journal of Occupational Therapy, 11(4), 156–162.

    Article  Google Scholar 

  • Law, M., King, G., Petrenchik, T., Kertoy, M., & Anaby, D. (2012). The assessment of preschool children’s participation: internal consistency and construct validity. Physical & Occupational Therapy in Pediatrics, 32(3), 272–287.

    Article  Google Scholar 

  • Levac, D., Colquhoun, H., & O’Brien, K. K. (2010). Scoping studies: advancing the methodology. Implementation Science, 5(1), 1–9.

    Article  Google Scholar 

  • Little, L. M., Sideris, J., Ausderau, K., & Baranek, G. T. (2014). Activity participation among children with autism spectrum disorder. American Journal of Occupational Therapy, 68(2), 177–185.

    Article  PubMed  PubMed Central  Google Scholar 

  • Morris, C., Kurinczuk, J., & Fitzpatrick, R. (2005). Child or family assessed measures of activity performance and participation for children with cerebral palsy: a structured review. Child: Care, Health and Development, 31(4), 397–407.

    Google Scholar 

  • Phillips, R. L., Olds, T., Boshoff, K., & Lane, A. E. (2013). Measuring activity and participation in children and adolescents with disabilities: a literature review of available instruments. Australian Occupational Therapy Journal, 60(4), 288–300.

    Article  PubMed  Google Scholar 

  • Resnik, L., & Plow, M. A. (2009). Measuring participation as defined by the International Classification of Functioning, Disability and Health: an evaluation of existing measures. Archives of Physical Medicine and Rehabilitation, 90(5), 856–866.

    Article  PubMed  Google Scholar 

  • Rosenberg, L., Jarus, T., & Bart, O. (2010). Development and initial validation of the Children Participation Questionnaire (CPQ). Disability & Rehabilitation, 32(20), 1633–1644.

    Article  Google Scholar 

  • Sakzewski, L., Boyd, R., & Ziviani, J. (2007). Clinimetric properties of participation measures for 5- to 13-year-old children with cerebral palsy: a systematic review. Developmental Medicine & Child Neurology, 49(3), 232–240.

    Article  Google Scholar 

  • Sylvestre, A., Nadeau, L., Charron, L., Larose, N., & Lepage, C. (2013). Social participation by children with developmental coordination disorder compared to their peers. Disability & Rehabilitation, 35(21), 1814–1820.

    Article  Google Scholar 

  • Venkatesan, S. (2005). Activity log of preschool children with developmental disabilities and autism spectrum disorders. Asia Pacific Disability Rehabilitation Journal,16(1),68–76.

  • Wang, S. T., Yu, M. L., Wang, C. J., & Huang, C. C. (1999). Bridging the gap between the pros and cons in treating ordinal scales as interval scales from an analysis point of view. Nursing Research, 48(4), 226–229.

    Article  PubMed  Google Scholar 

  • World Health Organization. (2007). International Classification of Functioning, Disability and Health—child and youth version. Geneva: WHO Press.

    Google Scholar 

  • Ziviani, J., Desha, L., Feeney, R., & Boyd, R. (2010). Measures of participation outcomes and environmental considerations for children with acquired brain injury: a systematic review. Brain Impairment, 11(02), 93–112.

    Article  Google Scholar 

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Acknowledgements

TY was supported by the Autism Research Training program, Canadian Child Health Clinician-Scientist Career Enhancement Program, Alberta Innovates Health Solutions Clinician Fellowship Award, Autism Society of Edmonton Area and Autism Research Centre Graduate Student Pilot Grant and Women and Children’s Health Research Institute Graduate Studentship. LARS was supported by the Alberta Innovates Health Solutions Post-Doctoral Fellowship Award. LZ was supported by the Stollery Children’s Hospital Foundation Chair in Autism.

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Authors and Affiliations

  1. Autism Research Centre – E209, Alberta Health Services, Glenrose Rehabilitation Hospital, 10230-111 Avenue, Edmonton, AB, T5G 0B7, Canada

    Tamara Yee, Lonnie Zwaigenbaum & Lori-Ann R. Sacrey

  2. Department of Pediatrics, University of Alberta, Edmonton, AB, Canada

    Tamara Yee, Lonnie Zwaigenbaum & Lori-Ann R. Sacrey

  3. Department of Occupational Therapy, University of Alberta, Edmonton, AB, Canada

    Joyce Magill-Evans

  4. School of Physical and Occupational Therapy, McGill University, Montreal, QC, Canada

    Sorayya Askari & Dana Anaby

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  1. Tamara Yee
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  2. Joyce Magill-Evans
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  3. Lonnie Zwaigenbaum
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  4. Lori-Ann R. Sacrey
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  5. Sorayya Askari
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  6. Dana Anaby
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Correspondence to Tamara Yee.

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Yee, T., Magill-Evans, J., Zwaigenbaum, L. et al. Participation Measures for Preschool Children with Autism Spectrum Disorder: a Scoping Review. Rev J Autism Dev Disord 4, 132–141 (2017). https://doi.org/10.1007/s40489-017-0102-8

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  • DOI: https://doi.org/10.1007/s40489-017-0102-8

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