Decisional needs assessment of patients with complex care needs in primary care: a participatory systematic mixed studies review protocol.

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Version: Final published version
License: CC BY-NC 4.0
Serval ID
serval:BIB_BE96DCFC292B
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Decisional needs assessment of patients with complex care needs in primary care: a participatory systematic mixed studies review protocol.
Journal
BMJ open
Author(s)
Bujold M., Pluye P., Légaré F., Haggerty J., Gore G.C., Sherif R.E., Poitras M.E., Beaulieu M.C., Beaulieu M.D., Bush P.L., Couturier Y., Débarges B., Gagnon J., Giguère A., Grad R., Granikov V., Goulet S., Hudon C., Kremer B., Kröger E., Kudrina I., Lebouché B., Loignon C., Lussier M.T., Martello C., Nguyen Q., Pratt R., Rihoux B., Rosenberg E., Samson I., Senn N., Li Tang D., Tsujimoto M., Vedel I., Ventelou B., Wensing M.
Working group(s)
Participatory Review Team
ISSN
2044-6055 (Electronic)
ISSN-L
2044-6055
Publication state
Published
Issued date
12/11/2017
Peer-reviewed
Oui
Volume
7
Number
11
Pages
e016400
Language
english
Notes
Publication types: Journal Article ; Review
Publication Status: epublish
Abstract
Patients with complex care needs (PCCNs) often suffer from combinations of multiple chronic conditions, mental health problems, drug interactions and social vulnerability, which can lead to healthcare services overuse, underuse or misuse. Typically, PCCNs face interactional issues and unmet decisional needs regarding possible options in a cascade of interrelated decisions involving different stakeholders (themselves, their families, their caregivers, their healthcare practitioners). Gaps in knowledge, values clarification and social support in situations where options need to be deliberated hamper effective decision support interventions. This review aims to (1) assess decisional needs of PCCNs from the perspective of stakeholders, (2) build a taxonomy of these decisional needs and (3) prioritise decisional needs with knowledge users (clinicians, patients and managers).
This review will be based on the interprofessional shared decision making (IP-SDM) model and the Ottawa Decision Support Framework. Applying a participatory research approach, we will identify potentially relevant studies through a comprehensive literature search; select relevant ones using eligibility criteria inspired from our previous scoping review on PCCNs; appraise quality using the Mixed Methods Appraisal Tool; conduct a three-step synthesis (sequential exploratory mixed methods design) to build taxonomy of key decisional needs; and integrate these results with those of a parallel PCCNs' qualitative decisional need assessment (semistructured interviews and focus group with stakeholders).
This systematic review, together with the qualitative study (approved by the Centre Intégré Universitaire de Santé et Service Sociaux du Saguenay-Lac-Saint-Jean ethical committee), will produce a working taxonomy of key decisional needs (ontological contribution), to inform the subsequent user-centred design of a support tool for addressing PCCNs' decisional needs (practical contribution). We will adapt the IP-SDM model, normally dealing with a single decision, for PCCNs who experience cascade of decisions involving different stakeholders (theoretical contribution). Knowledge users will facilitate dissemination of the results in the Canadian primary care network.
CRD42015020558.
Keywords
Canada, Decision Making, Focus Groups, Health Services/utilization, Humans, Needs Assessment, Patient Participation, Primary Health Care/organization & administration, Qualitative Research, Research Design, interprofessional care, patients with complex care needs, primary care, shared decision making
Pubmed
Web of science
Open Access
Yes
Create date
16/11/2017 21:27
Last modification date
20/08/2019 15:32
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